When life gives you lemons, make lemonade right? Sometimes it’s easier said than done. We all understand that, but in a hard moment those lemons sure would be nice as a glass of lemonade. My husband and I feel blessed that we’ve managed to overcome every obstacle thrown at us as a team. Even in moments we felt hopeless, there was always a light at the end of the tunnel. We have been together for ten long, beautiful years and every day we work on another ten. One step at a time.
Before we begin our Alivia’s story, a little background information would be a great way to start. Five years after we were together, my husband and I were married. This was one of the happiest days in our lives, and naturally the next step was to start a family of our own. Being the type I am, I wanted the marriage and home first, then the baby. If it was my husband’s choice, we would have had the baby first and then everything else to follow. He is crazy about kids and one of his great traits is that he is keen to jump into the unknown. Unfortunately for him I am more of the planner and over thinker!
We are a regular family, no different than yours. We live a happy life and have lots of love for Alivia and each other. We live in a nice middle class community, and feel blessed and rich with what we have. I like to laugh and I’m very down to earth. Some people have mentioned I laugh at my own cheesy jokes even when they are not funny – makes things weird, but I’m having fun. My husband sometimes thinks it’s an odd trait but life is too short to be sad for too long. So my motto is to laugh, a lot. It truly is the best medicine. So go ahead and enjoy the sweet moments. Don’t get me wrong though, when we go through tough times I still cry, stress, and make myself sick from worry. Just don’t stay in that moment for too long, or in between those hard moments, you may miss something wonderful and will never get that back. Mmmm lemonade!
What I’m trying to say is even through the ups and downs, we all need to find that jug of lemonade. I know in the midst of looking for it, sometimes with all the lemons in the way, it’s hard. But soon you will find it and enjoy that amazing glass of lemonade.
You might be wondering…why is she writing about all these lemons? Well, in the moment these lemons are the worst thing possible. Now when I look back I take more time in the good moments. Each and every one of us will fall in bad moments, but how you learn and pick yourself up is what matters. Some of us are dealt more lemons then others, but that is why the end result is that much sweeter.
Finding out Alivia has Hydrocephalus was the biggest lemon we’ve had to deal with thus far. But in between all the fear, pain, uncertainty, anger, sadness, there is that one moment when she smiles, or gives you that open mouth wet kiss, or sleeps so soundly you realize that there is still so much beauty and good to be thankful for. When everything started happening to Alivia it broke us, but also made us so much stronger as a family. We cried, we were angry, alone, hurt, scared. We don’t want anyone to ever feel that again.
I want to share our journey of living with someone who has Hydrocephalus. The feelings and the moments, the good and bad versus the medical facts and big words that scare all of us. I want to know what everyone else goes through in their journey as well, whether it’s your children or whether you are living with Hydrocephalus. These are things that we need to know, as our daughter is still young. Lemons and some Lemonade! Lets bring more light to this as a community, a place that is not gloom and doom, a place that is your second support home. The more of us that speak out and share, the more the world will know of Hydrocephalus.